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                                            • Rehabilitation for children and adolescents in Austria: A systematic analysis of evaluation methodologies

                                            Rehabilitation for children and adolescents in Austria: A systematic analysis of evaluation methodologies

                                            Adobestock-886170014
                                            Research area: Rehabilitation and occupational therapy

                                            Project leaders: Sarah Wolf

                                            Project team: Sarah Wolf

                                            Duration: April 2019 - October 2019
                                            Suggested by: Main Association of Austrian Social Security Institutions
                                            Language: German

                                            Publication: LBI-HTA Project report No. 122: https://eprints.aihta.at/1222
                                             

                                            Background:
                                            The current Austrian rehabilitation plan (2016) earmarks a need for rehabilitation centres for children and adolescents across Austria in four supply regions with a total of 343 beds for children and adolescents and an additional 50 beds for parents and siblings within the family-oriented rehabilitation programme:

                                            • Supply region 1: east (Lower Austria, Vienna, northern Burgenland)
                                            • Supply region 2: south (Styria, Carinthia, southern Burgenland)
                                            • Supply region 3: north (Upper Austria, Salzburg)
                                            • Supply region 4: west (Tyrol, Vorarlberg)

                                            The rehabilitation centres should cover 11 indication groups.

                                            Area

                                            Indication groups

                                            (German) Abbreviation

                                            Somatic area

                                            Diseases of the musculoskeletal system and Rheumatology

                                            BSR

                                            Cardiovascular diseases

                                            HKE

                                            Paediatric surgical diseases

                                            KCH

                                            Neurological diseases

                                            NEU

                                            Neurosurgery

                                            NC

                                            Pulmonary diseases

                                            PUL

                                            Diseases of the metabolic and digestive system

                                            STV

                                            Mental Health Rehabilitation

                                            Child and adolescent psychiatric disorders

                                            KJP

                                            Developmental Disorders and Diseases for Social Paediatric Care/Paediatric Psychosomatic Diseases

                                            ESP

                                            Family-oriented rehabilitation

                                            Oncology

                                            FOR

                                            Stem cell transplantation


                                            The family-oriented rehabilitation (FOR) for life-threatening diseases (e.g., oncological diseases) forms a crucial element in the construction of the rehabilitation centres. Within the FOR parents/ legal guardians and siblings are also included in the rehabilitation programme. Therefore, on the one hand, the programme aims to promote rehabilitation willingness and acceptance of the affected child for the therapeutic measures, while at the same time it helps to train parents to become co-therapists.

                                            Aim of the project:
                                            The aim of the project is the preparation of a subsequent evaluation of rehabilitation programmes for children and adolescents in Austria and thereby, providing an overview of evaluation methods and tools. As a result, a compendium of validated evaluation tools will be presented.

                                            The envisaged project does not involve the detailed planning or implementation of an evaluation.

                                            Research questions:

                                            1. Which generic endpoints and/or outcome parameters in the field of rehabilitation for children and adolescents have been collected from reviews, evaluation reports, etc. in settings comparable to Austria?
                                            2. Which indication-specific endpoints and/or outcome parameters in the field of rehabilitation for children and adolescents have been collected from reviews, evaluation reports, etc. in settings comparable to Austria?
                                            3. Which measuring instruments have been used to collect the generic or the indication-specific endpoints and/or outcome parameters?
                                            4. Which evaluation results have been achieved regarding rehabilitation programmes for children and adolescents?

                                            Methods:
                                            To answer the four research questions the following methods are used:

                                            • Ad 1+3: A systematic review of evaluation methods for rehabilitation programmes for children and adolescents with the focus on generic outcomes and suitable measuring instruments (detailed description).
                                            • Ad 2+3: A systematic review of evaluation methods for rehabilitation programmes for children and adolescents with the focus on indication-specific outcomes and suitable measuring instruments (broad overview).
                                            • Ad 4: A systematic review of the evaluation results of rehabilitation programmes for children and adolescents in settings comparable to Austria (inpatient, generic).

                                            In a first step, a systematic literature search on reviews and evaluation reports will be conducted.

                                            The inclusion criteria for the systematic literature search are as follows:

                                            Population

                                            Children and adolescents, age 0-18 years

                                            Intervention

                                            Inpatient, medical rehabilitation for children and adolescents

                                            Control

                                            -

                                            Outcomes

                                            • Generic (cross-indication) outcomes
                                            • Indication-specific outcomes
                                            • Measuring instruments for the collection of outcome parameters
                                            • Evaluation results

                                            Study design

                                            Observational studies, reviews, evaluation reports, dissertations in German or English

                                            Publication period

                                            01/2000 until 05/2019


                                            In addition to the systematic literature search, an extended hand search will be conducted and experts in the field of rehabilitation evaluation will be contacted.

                                            Following the literature selection and investigation, the collected outcomes and measuring instruments, as well as the evaluation results will be extracted and summarised. The result will be a qualitative evidence synthesis and a compendium of validated evaluation tools.

                                            All processing steps (literature selection, data extraction, if necessary, quality assessment) will be conducted by one researcher and monitored by a second researcher.

                                            Time schedule:

                                            Period

                                            Task

                                            April-May 2019

                                            Scoping, project protocol, systematic literature search, literature selection, additional hand search, first contact with experts

                                            June – July 2019

                                            Data extraction

                                            August – September 2019

                                            Writing/drafting of report

                                            October 2019

                                            Internal and external review


                                            References:

                                            Gyimesi M., Fülöp, G., Ivansits S., Pochobradsky E., Stoppacher A., Kawalirek S., Maksimovic A. Rehabilitationsplan 2016. Gesundheit Österreich, Wien.

                                            Winkler R., Piso, B. Mental Health Rehabilitation bei Kindern und Jugendlichen – Literaturübersicht zu Indikationen, Ergebnisparametern und Messinstrumenten für Evaluierungen. LBI-HTA Projektbericht Nr.: 67; 2013. Wien: Ludwig Boltzmann Institut für Health Technology Assessment.

                                            Pammer C., Abuzahra M., Wild C. Schweregraddifferenzierung in der neurologischen und Trauma-rehabilitation Teil 1: Messinstrumente bei Schlaganfall und Schädel-Hirn-Trauma. LBI-HTA Projektbericht Nr.: 023a; 2009. Wien: Ludwig Boltzmann Institut für Health Technology Assessment.

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